Treacher Collins syndrome: My parents abandoned me 36 hours after I was born – they rejected me again as an adult'
The 38-year-old has Treacher Collins Syndrome, a genetic condition which meant the bones and tissue in his face grew at a different rate.
When Jono Lancaster was just 36 hours old, he was given up for adoption because of his birth defect and now he’s a professional model, a teacher and an inspiration to millions of people. He says: "Instead of feeling sorry for my self I believe in myself. Instead of asking why me, I’m thinking it’s good to be me. Instead of hating the way I look I love the way I look."
Jono Lancaster was hours old when his birth parents abandoned him in the hospital after he was born with Treacher Collins Syndrome, before refusing to meet him two decades later
In a world often obsessed with appearances, Jono Lancaster's story stands as a beacon of strength. Born with Treacher Collins syndrome (TCS), a rare genetic disorder affecting facial development, Jono's journey from adversity to advocacy has reshaped perceptions and inspired countless hearts.
TCS: Unveiling the Challenge
Treacher Collins syndrome disrupts facial bone and tissue development, resulting in distinct craniofacial features. Jono Lancaster, born in 1985 in England, faced a childhood marked by surgeries and hardships due to his facial differences. The emotional toll was immense, but his experiences molded him into a powerful advocate.
A Defining Moment
Jono's life changed when he discovered a supportive community of fellow TCS individuals. This connection fueled his mission to promote TCS awareness and acceptance. Embracing his uniqueness became a powerful tool to inspire others and reshape societal attitudes.
Turning Adversity into Action
Jono's authenticity struck a chord as he shared his story through public speaking and social media. His candidness resonated with diverse audiences, sparking conversations on empathy and diversity. His impact reached far beyond awareness, as he co-founded the "Love Me Love My Face" campaign, championing understanding and self-worth.
A Journey of Transformation
Jono's story resonates as a journey of self-discovery. His path from bullying and isolation to advocacy and empowerment exemplifies the resilience of the human spirit. His advocacy efforts educate schools and organizations, creating spaces for dialogue on acceptance and mental health.
The Power of Embracing Uniqueness
Jono Lancaster's legacy isn't confined to TCS. His story empowers those facing challenges, demonstrating the potential to transform adversity into positive change. He challenges societal norms, urging us to see beyond appearances and celebrate the richness of human diversity.
A Global Call to Action
Jono's journey calls us to action. It compels us to redefine beauty standards, cultivate empathy, and foster inclusive environments. His story reminds us that every voice matters and each experience can drive change.
A Lasting Impact
Jono Lancaster’s narrative exemplifies the strength of the human spirit in the face of adversity. He has shown that embracing one’s uniqueness can change lives and reshape perceptions. His legacy will guide us toward a world that values authenticity, empathy, and the beauty within us all. Jono Lancaster’s journey from facing personal struggles to becoming a global advocate for Treacher Collins syndrome awareness reminds us of the power of resilience and the transformative potential of embracing our differences.
